My Little Pie

My Little Pie

Tuesday 18 March 2014

Back to square one...sigh

Since Iyla's reaction two Sunday's ago her gut still isn't completely healed. She is happier and sleeping better thankfully but she is still doing random mucousy poos and even just a tiny suck on an apple caused reflux, lots of spit up and trouble sleeping. So it seems we are back to no safe foods for now. Iyla has also lost 300grams and it is still a struggle to get her to drink much. It is getting better but we are only managing to get her to drink 600-800ml in a 24hr period. Not really enough when she isn't eating anything. 

The plan now is to give her a full 2 weeks of gut rest and then trial a vegetable and leave the apple and pear for now. Hopefully we can keep her away from food on the floor during this time so we can all have a few enjoyable weeks.

Tuesday 11 March 2014

Sleepless nights SUCK!!

Just when you think life is pretty good and things are cruising along nicely Iyla has another reaction and we are back to square one.
Sunday morning we started feeding her pear and Sunday night she had a pretty bad reaction with lots of vomiting and not much sleep. I don't think it was the pear though, it was too late after feeding her for her to have had such a bad reaction. I'm guessing she must have picked up something off the floor. I really hate not knowing what it was, especially seeing how badly she reacted to it. As far as i know none of her worst foods were eaten by anyone that day so obviously she has another one.
 

Since Sunday night we have barely managed to get Iyla to drink any formula or eat any food. Yesterday got a bit stressful when she went more then 15hrs without anything at all!! We ended up having to get very forceful and hold her down to force fluids into her. It was pretty horrible but we really wanted to avoid a trip to the hospital, having a drip put in would be worse. Over a few hours we managed to get her to drink 160ml of formula. Then last night when i woke her for a dream feed she drank 240ml. I was so happy to get her finally drinking something again. 

We still had another horrible night of screaming though so over the past 3 nights i have probably only gotten 6-7hrs sleep all up. I was sick with a horrible cold just before Iyla's reaction and the coughing and sore throat kept me awake for a few nights too. I really don't know how i coped with only a few hours of sleep a night for 8 months when Abbey was a baby. I am so exhausted now just from a week of it! I'm really hoping for a decent sleep tonight. Iyla is drinking properly again so that is a good sign that she is starting to feel better.

We will start trialing pear again when Iyla has a few days of being completely back to her happy self.

Wednesday 5 March 2014

Some good news!

It is so exciting to post some good news. Iyla passed her Neocate Spoon trial and since then we have also started an apple trial and are ready to call that a pass too. It's been 5 days today and we weren't very strict with how much she had as we were sure there would be no reaction and she has had pretty much as much as she wants. She is having a few issues swallowing the puree but still loves being fed, loves the taste and LOVES spitting it all over me hahaha. She has been cutting her first two teeth and because i can't give her panadol or teething gel for the pain i have been giving her cold raw apple to chew and suck on. She thinks this is fantastic and can't get enough. It is the most amazing thing watching her eat! The enjoyment on her little face is priceless.

Over the past few weeks Iyla has still had a few reactions. One was my fault when i got a bit too confident and let her suck on a piece of banana one day. (It get so difficult not being able to feed her when she looks at me longingly when i eat!) The look of complete and utter delight on her face at the taste wasn't worth watching her in agony later that night or getting covered in vomit.
Another milder reaction happened while we were away for the long weekend. We aren't sure what it was from but knew she had been chewing on something. Just couldn't figure out what it was. We barely got any sleep that night but thankfully the screaming wasn't too much and she didn't even wake Beck or Zenon up who were sharing our cabin. For 2 days later she had a few explosive nappies a day and she completely lost her appetite. It was a struggle to get 400ml into her a day. Thankfully she is back to her normal self again.


Even though things are mainly going well, we still never know what will happen in a day. I have to stay on top of my cleaning so we avoid accidental reactions and i wont feed her again with something we aren't trialing. Sometimes i just feel a bit crazy and this whole thing isn't real when she doesn't have a reaction for awhile. She is such a normal happy baby otherwise. I hate how food is so dangerous!