My Little Pie

My Little Pie

Thursday, 31 October 2013

Our worst nightmare has come true

I remember so clearly the day i found out i was pregnant with Iyla (just over a year ago now) and the first thing i thought was 'What if this baby has FPIES too?' Throughout my pregnancy i comforted myself with the thought that the chiro cured Abbey so quickly, surely he would be able to cure the baby too if it came to that. Deep in the back of my mind though the worry was continually there, what if NAET didn't work? What if the baby was worse the Abbey? I tried not to let myself think these things because i was determined to stay positive.
Then Iyla was born and she already so quickly started showing symptoms of allergies. Off to the chiro we went with such high hopes. A few days ago now those hopes came crashing down when the chiro sadly told me that he didnt know what else to do and nothing he was trying was working. Totally devastated is the best was to describe how i felt. My thoughts went straight back to what it was like dealing with Abbey and watching her in so much pain all the time and i just wanted to cry. This was not supposed to happen, this was not the way it was meant to be.

The past few days i have really been struggling with the fear of what is to come when Iyla starts solids. I am trying to give my fear and worry to God as i know He is the only one who is going to be able to help me through this again. He got me through it once so i know He'll be there for me again. But being human like i am it is hard to let go of these feelings and trust everything will be ok. I was also diagnosed with Post Natal Depression this week so the negative thinking is hard to get away from.

Onto a more positive note, my doctor is being fantastic with what Iyla is going through. In her own time she has been researching FPIES and found an allergist in Perth who deals with lots of FPIES kids. She called her yesterday and told her all of Iyla's history. The allergist has suggested i take Iyla off goats milk formula and try her on Karicare Aptimal Allerpro. She is wondering if all Iyla's random reactions are actually from her formula and not just us touching her mouth or dummy. We have a referral to see this allergist now and will hopefully get in to see her sometime before Christmas. They also want to do testing to make sure we rule out everything else that could possibly be wrong with her before we officially say it's FPIES again.

So it's been an interesting week. It will be interesting to see how everything turns out in the coming months. I will keep you all posted on how Iyla goes with her new formula. She is still pretty miserable from having her immunisations 3 days ago so i'm not going to start until she is hopefully feeling better.

Monday, 28 October 2013

Abbey had a reaction today :(

It has been such a long time since she has had one, it was kind of a shock. We went out yesterday for a bit of an in-law family get together. She must have eaten something there that either she hasn't eaten before or something that she is still allergic to. I was busy with Iyla most of the day and there was food all over the place so she could have gotten anything.
Yesterday afternoon she already started with extreme tantrums. Apparently she screamed for 45min after i left for church because the hug i had given her before i left wasn't good enough. Over night she kept waking up screaming that she had a sore tummy. She was also burping like crazy and kept regurgitating her food. There was nothing i could do but cuddle her until she was ready to go back to sleep. Then do that over and over again. This morning she vomited 4 times. Not big ones but she was most upset about them. She cried so much this morning, constantly doubling over and holding her stomach as tight as she could. It was pretty heartbreaking to watch and not be able to do anything. She kept looking at me with these pleading eyes like i needed to help her.
She slowly improved as the afternoon went on, with less crying and less stomach cramps. Thankfully!!! Hopefully she will sleep ok tonight and the diarrhoea i'm expecting tomorrow wont be too bad.

Saturday, 12 October 2013

Still having reactions

Since having this inergetix CoRe anklet on Iyla we haven't really need any improvement. For the past two weeks we have been on holidays and Iyla was fantastic. But the entire time she had runny mucusy green poo. Although she was still really happy, on one of the days she had an hour of screaming in obvious pain and she was pretty spewy. It took until a few days before we left for me to think that maybe it was sunscreen that was causing the problem. I had only put some on her a couple of times but with me having it on my skin and holding her she could have easily licked it off. I became extremely careful and didn't let her lay her head against my shoulder without a cloth being in between and after applying sunscreen i washed my hands thoroughly. Within a day her poo was back to normal. Problem solved :).
When we were on our way home though (we drove 10.5hrs one day and 4hrs the second day) she had another horrible reaction. It was awful dealing with it in the car. She screamed for 6 hours with only a few short sleeps in between. She soaked her clothes in poo and spew so we had to stop lots to change her. It was the worst trip ever! 
So sadly there hasn't been a magical cure. I am going to take Iyla back to the chiro again next week if i can get an appointment so we will see what he says.