1 and a half weeks ago my little climber got into the pantry, climbed up a few shelves and found a box of muesli bars. I was busy hanging up washing outside and had no idea what she was up to. When i found her she had bitten through the wrapping and eaten about 1/4 of the muesli bar. I was in sudden freak out mode. There were sooo many bad foods in that bar! Oats, rice, sultanas, apple, sunflower oil and the list goes on. Amazingly though apart from a few foul poos the next day there was no reaction. I was in shock and so confused. How could she react to such a teeny tiny amount of pumpkin just days before and then eat a few mouthfuls of her worst known foods without a single problem?? FPIES is so weird!!
The next day i decided to be brave and fed her a little bit more of the muesli bar. I just wanted to know if it was just a fluke that there was no real reaction or if she had actually started to outgrow some of her allergies. There was still no problems apart from one mucous filled poo. Excitement started to kick in. Could this be it?? Could her body be starting to tolerate foods that previously she reacted to severely? I decided then it was time to do an oat trial.
It's been 9 days of her having small amounts of porridge for breakfast. Things since starting have been very confusing. We have had good days and bad days, normal poo and disgusting poo, tantrums, sensory issues and some reflux. It hasn't been overly bad but even staying on 2 teaspoons hasn't improved anything. I was going to stick to it but this Mumma needs sleep. Night times (especially the last 3) have been terrible. I'm tired and over it.
It is absolutely awesome that she has tolerated oats so well compared to what used to happen when she was a baby. But i don't think there is any point pushing it right now. I'll wait another 6 months and then give it another try.
For the next three weeks we are having another break from trials as Reuben is away and i don't feel like dealing with any reactions on my own. I'll keep you posted on what we try next.