My Little Pie

My Little Pie

Saturday 14 July 2012

Still not getting better

So, even though we have cut out spinach and canola oil, we haven't been seeing any real big changes in Abbey's mood, sleep or appetite. On Wednesday she had another 3 spaced out episodes that kind of freaked me out. We decided on Friday to retest all of her foods with the muscle allergy test and now everything is testing bad. We are thinking that one of her foods has been a very delayed reaction and that it has inflamed her stomach too much and now we are back to square one. Now the problem is working out which food is the truly bad one.

After speaking with Abbey's dietician we have decided to cut back down to 4 scoops of formula per bottle instead of 5. Cut back on the amount of probiotics we are giving her and only give it every couple of days instead of everyday. The dietician thinks its the probiotics that are the problem. They have potato in them and because it such a small amount it could have taken this long for her to start to react to it. We have also cut back on apple. Apple is pretty acidic so that could also be causing problems. We aren't cutting out all her foods though, so we can only hope that things start to improve with the changes we have made and that the problem isn't from one of the foods we are still feeding her. 

Since making these changes Abbey's appetite has gone back to normal. It's a bit hard to judge her sleep patterns because we went away this weekend and being away from home really messed her up. We will hopefully see improvement now that we are back at home. She is still spitting up heaps though and doing lots of burps, having hiccups heaps and she is also really gassy.

Her dietician also wants me to take her to see her normal doctor here to make sure her spaced out moments weren't seizures. Being lethargic and out of it can be a symptom of FPIES but we have never seen it with Abbey before and it usually comes on from lots of vomiting which causes dehydration. Hopefully there is nothing wrong and it was just from her being dehydrated from barely drinking for a few days.

2 comments:

  1. Hi Tash, I hope the spaced-out episodes aren't seizures. though I'm glad you're getting her checked as that's what I thought when you described it in your last post. Thinking of you guys and praying Abbey picks up soon!

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  2. hi I have been looking up lots of things on the net today and have come across your story. I really do feel for and the family, We are going through the exact thing with our daugher. We had problems from day dot. Now she is 19 months old and we have only just recently been told she has Fpies as well as allergic colitis and IgE to some foods. At the moment she is not on any foods just a medicated formula. We have done Patch testing which has showed she is allergic to all protiens in foods. I hope things do improve for Abbey.

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