It has been almost a week since we started Abbey on the Neocate formula and things have been pretty rough. We are still mixing it with her goats milk formula, 60ml of Neocate to 150ml of goats milk formula because she hates the taste. But she has been one seriously miserable little girl. We have had almost non-stop crying, a few vomits and at the start horrible diarrhoea, then constipation and now diarrhoea again. The only good thing is that she has been sleeping a bit better during the night. Although she is taking till 9 or 10pm before she actually goes to bed she is only waking me once or twice for a bottle during the night. I am very thankful for that. It gives me a bit more energy and patience to deal with all the crying during the day.
I am still not sure if we need to stop giving it to her or not but i need to wait till Friday before i have that answer as Abbey's dietitian is away until then. We will keep pushing through for now and hope that her stomach will start tolerating it. From talking to other FPIES mums i have found out it can sometimes take up to a month for kids to get used to it. I really don't know if i can handle it till then but i guess if it ends up being for the better then it would be worth it!